NCSA has submitted the following comments in response to the IACC call for public comments to inform the development of the 2021-2022 IACC Strategic Plan.
Read moreNew paper says that when it comes to severe autism, research misses the mark
“Those with intellectual disability or minimal verbal ability are often systematically excluded from research on ASD,” say the researchers, resulting in “limited applicability to people who may need the most support.”
Read moreIn New York City, a Haven for Families Living with Severe Autism
SNACK* serves the spectrum, and in contrast to most state-funded programs, welcomes clients with severe behaviors.
Read moreNew Study Finds Childhood Autism Rates in Jersey Are Double National Estimates
Autism affects about 1 in 28 children, or about 3.6% of children in metropolitan areas of the Garden State.
Read morePlease respond to urgent need for evidence-based services for adults with ASD
“For those of us in the trenches, living with and supporting an adult with severe autism, [lack of services] is an issue of how to stave off the suffering and misery that lie in his future when we can no longer protect him.”
Read moreA mother's prescient 2012 letter about the disaster of DSM-5 ASD
After 8 years of the DSM-5’s disastrously overbroad “Autism SpectrumDisorder," we can now safely say the doomsayers were correct. Here’s a letter written by a mom before the DSM-5 went into effect. NCSA is now calling for reform.
Read moreThe law must allow relatives to open group homes for the severely autistic
Public comment to the IACC: “This system breaks families apart.”
“Now that they are men with the intellect of young children, they need adequate housing and support, beyond our home.” But “there is a severe shortage of Res Hab homes for the profound population.”
Read more"The IACC needs to hold a session on inpatient and outpatient care options for the severely autistic who can no longer live safely at home"
Many public comments to the IACC stress the crisis in crisis care. Families endure years of trauma and desperation, with little support.
Read moreIACC 2021: A Potemkin Village of Autism?
See the fake-facade photographs of Zacharie Gaudrillot-Roy at https://www.cnn.com/style/article/zacharie-gaudrillot-roy-facades/index.html.
Despite some glimmers of serious intent, the “autism” discussed at the IACC was for the most part a mild difference, with members sometimes angling to swipe away severe autism with an Orwellian language eraser.
Read moreNCSA Calls for Categorical Recognition of Severe Autism in the DSM
Virtually all of the problems that recur … stem from, or are worsened by, the lack of a unique diagnosis for severe autism and the devastating symptoms that often accompany it.
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