The family was incredibly lucky that Sandhya was home and outside; that the fire did not start at night while the family slept ("It would have likely been fatal," she said).
Read moreWatch: The September 26th Project 2023 Video
When disaster strikes, "sometimes, the outcome is senselessly tragic, forever altering the quality of life for the entire family unit. The September 26th Project is dedicated to raising awareness about emergency preparedness for all families."
Read moreNCSA Seeks Proportional Representation for Profound Autism at IACC
NCSA submitted the following public comment to the federal Interagency Autism Coordinating Committee for consideration at its October 11, 2023 meeting.
Read moreWhen children with severe autism endanger their families, residential care may be the best option
The story of one mother’s difficult decision to place her son in a residential program
Read moreIsolated and Neglected in an HCBS Community Living Home
A young woman is suffering in a group home. Her mother makes an appeal to Kentuckians who have adult loved ones with severe and profound autism.
Read moreLetter Addresses Discrimination Against the Severely Disabled in Federal I/DD Committee
Letter by Dawn Kovacovich to the President’s Committee for People with Intellectual Disabilities (PCPID) points out the committee’s discrimination against those with the most severe cognitive disabilities.
Read moreWhen Profound Autism Falls Off the Cliff into the Abyss
“While everyone “celebrates” autism, no one is coming up with desperately needed solutions for the adults who are most severely affected.” By Alicia Mesa
Read moreWe Need Profound Acceptance of Profound Autism
“It profoundly disturbs me that choices are limited for those who have the greatest disabilities.”
Read moreCall on Researchers, Not Filmmakers, to Test Facilitated Communication: A Commentary on Spellers
Amy Lutz argues that we must turn to objective science, not slickly edited documentary films, to test the agency of people with autism using facilitated communication.
Read moreMedia Misstep: Non-Profound Autism Definitely Does Not Mean "Mild"
While we embrace the progress of the profound autism label, we must be vigilant to ensure the term does not obscure the broader population clearly and often severely disabled by autism but who do not meet criteria for "profound" — or be used to trivialize the skyrocketing rates of autism.
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