Britney Spears in concert (photo: Wikipedia)
In the case of adults with severe autism, families petition for conservatorships not because they want to oppress or control their extremely vulnerable loved ones, but because they want to protect them.
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“Severe” or “not-so-pretty” autism voices demand a place at the table, and no noisy, lame attempt to shame the advocates over semantics will “cancel” the grim statistics. Severe autism is coming for all of us, actually. It’s time to listen.
Read moreAn autism mom calls for an integrated care approach for the severely autistic.
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The IACC has been around for 2 decades, so I think it’s fair to ask, “Are we better off today than we were 20 years ago?” The answer is unfortunately no, we are most definitely not better off today. While some minor battles have been won, we are losing the war, and losing it big.
Read more“True advocates … must awaken to the coming tide, if the most needy on the autism spectrum are to thrive and survive.”
Read more“I still dread answering my phone. Afraid it means the police are there again. That there is another hole in his wall that another broken window has sliced his hands and feet.”
Read moreThe study, Autism Tsunami: the Impact of Rising Prevalence on the Societal Cost of Autism in the United States, by Mark Blaxill, Toby Rogers and Cynthia Nevison, concludes that future costs of autism could be $589 billion/year in 2030, $1.36 trillion/year in 2040, and $5.54 (4.29–6.78) trillion/year by 2060.
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Timon is now invaluable. He helps not only our sons but also helps us as parents better manage the struggles our children face on a daily basis.
Read moreAs autistic kids grow up, their needs can increase while services decline. A dad asks, is the system upside-down?
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